My motivation behind the VisKid Foundation is my son, Leo who has Joubert Syndrome a rare genetic condition. Leo, 4 is registered blind, has ataxia and kidney cysts that will eventually lead to kidney failure. Medical advancements are our only hope, and this is done through research, which is extremely expensive hence why it is vital that we raise as much money as possible.
A number of rare conditions are caused by Cep290 including Joubert Syndrome, Leber’s Congenital Amaurosis, Senior Loken Syndrome, Bardet-Biedl Syndrome and Meckel-Gruber Syndrome.
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